Where it all started…..

My journey actually started from birth when I was born with a rare genetic connective tissue disorder that progressed as I got older. The signs and symptoms were there but nodody could see them and we had no idea what my life was about to entail.

Fast forward to my teen years, I really begin to struggle physically but things were overlooked. I was diagnosed with Graves’ disease early into my first pregnancy where I struggled with pregnancy complications. I delivered my beautiful son 8 weeks early at 17 years old. I tried to push through life as a young mom with an autoimmune condition, but as the years went on, more symptoms continued to pile on and even doctors couldnt keep up with me. I later went on to deliver 2 more beautiful children. And a few years later, I was introduced to the Spoonie life- the chronic illness community, where spoons mattered.

I went through season after season of being misdiagnosed, dismissed, and brushed off. Appointment after appointment felt the same: “everything looks normal,” “it’s anxiety,” “you’re too young for that.” After a while, I started questioning myself. Maybe I was too sensitive. Maybe this really was all in my head. But deep down, I knew something was wrong. My body didn’t function like everyone else’s, and pretending otherwise was really draining the life out of me. I felt invisible to everyone while fighting for my life on the inside.

Then one day, the invisible didnt feel so invisible anymore. I met a doctor then later her assistant who didn’t dismiss me, talk over me, or make me feel crazy. They listened. They examined me carefully. And for the first time, all of the strange things happening both inside and outside of my body began to make sense since my child hood. They introduced me to a condition that most doctors have never heard of—or claim is too rare to have: Ehlers-Danlos Syndrome. I talk about it here: The truth about Ehlers Danlos Syndrome (EDS) Explained: What You Should Know – Running Out Of Spoons. That diagnosis led to another puzzle piece falling into place: POTS, And later, in my 30s, additional puzzle pieces appeared—multiple rare abdominal compressions that affected my whole GI severely and more.

The validation I received that day was so healing in ways I didn’t expect. My body had been speaking for years, and finally, someone heard it. The answers didn’t erase my symptoms, but they changed everything. They didn’t just help future doctors understand me better—they helped me understand my body with compassion instead of doubt. And for the first time, I could finally acknowledge just how delicate, yet incredibly strong, it really is. I will never forget the doctors that God placed in my life at that moment.